• "My neuro-oncologist is talking about palliative care, and I could not be more excited"

    Palliative care can and should be proactive, but so often it seems like it’s a reactive, second thought for people with brain cancer. The question is: Why?

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  • Patient-led collaborative receives PCORI award

    Brain cancer patients and care partners approved for a $50,000 funding award by the Patient-Centered Outcomes Research Institute (PCORI) to support a project on brain cancer and palliative care.

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Our Mission

We engage diverse stakeholders who care for people with brain cancer in the prioritization, design, and conduct of research important to these stakeholders.

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Research Priorities

Optimizing palliative care may require improved coordination with the patient’s entire care team over the full course of illness—rather than the more typical episodic, symptom-based approaches that are reactive rather than proactive.

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The Stakeholders

We're a robust and committed partnership of people with brain cancer, care partners, clinicians, researchers, and advocates. Our partners bridge existing siloes in neuro-oncology and palliative care.

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25 : 1
failure ratio for brain tumor treatments over last two decades
15 months
average lifespan after diagnosis of glioblastoma
97
percent of people with brain cancer who receive 21 days of hospice care or less before dying