• "My neuro-oncologist is talking about palliative care, and I could not be more excited"

    Palliative care can and should be proactive, but so often it seems like it’s a reactive, second thought for people with brain cancer. The question is: Why?

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  • Patient-led collaborative receives PCORI award

    Brain cancer patients and care partners approved for a $50,000 funding award by the Patient-Centered Outcomes Research Institute (PCORI) to support a project on brain cancer and palliative care.

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Comparative Effectiveness Research for Glioblastoma and Palliative Care

The PCORI Pipeline to Proposal (P2P) Awards program is designed to help people form new collaborations with the goal of developing proposals for research with sound scientific rigor and robust patient engagement.

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Why Palliative Care?

Optimizing palliative care for people with glioblastoma may require improved coordination with the patient’s entire care team over the full course of illness—rather than the more typical episodic, symptom-based approaches that are reactive rather than proactive.

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The Stakeholders

Stakeholders in the Brain Cancer Quality of Life Collaborative include patients, family members, social workers, nurses, neuro-oncologists, palliative care experts, researchers and others, each with a unique perspective on the quality of life experience for people with glioblastoma.

meet the team
25 : 1
failure ratio for brain tumor treatments over last two decades
15 months
average lifespan after diagnosis of glioblastoma
97
percent of people with brain cancer who receive 21 days of hospice care or less before dying