Our mission is to engage diverse stakeholders who care for people with brain cancer in the prioritization, design, and conduct of research important to these stakeholders. Our specific goal is to identify, test, and disseminate models of healthcare that support quality of life for these people and their care partners.
Brain cancer is a relatively rare but devastating cancer, with a 5-year relative survival rate for the most common primary malignant brain tumor (glioblastoma) of only 5.5%. Patients often experience physical and cognitive decline, and personality and behavior changes. Despite dedicated research there still exists:
A 25 to 1 failure ratio for brain tumor treatments over the last two decades.
A 15 month average life span after glioblastoma diagnosis.
97% of people with brain cancer receive 21 days of hospice or less before dying.