Our Team

Project Leads

Liz Salmi

Liz Salmi is the Senior Strategist of Outreach & Communication for OpenNotes at Beth Israel Deaconess Medical Center. She’s also a patient.

After receiving a brain cancer diagnosis one week after her 29th birthday, Liz began bl

Bethany M. Kwan, PhD, MSPH

Social psychologist and health services researcher at the University of Colorado. Daughter and care partner of a person who had glioblastoma.

Benzi Kluger, MD, MS, FAAN

Benzi Kluger, MD, MS, FAAN is a Professor of Neurology at the University of Colorado and Founder and Chief of their Neuropalliative Care Section. Over the past 5 years, he has dedicated his career to the emerging field of neuropalliative care, the application of palliative care approaches and princi

Investigators

Adam Hayden, MA

Adam Hayden, MA (@adamhayden) is a graduate trained philosopher, blogger, and speaker. In June 2016, Adam was diagnosed with the aggressive and deadly brain cancer, glioblastoma (GBM), a grade IV astrocytoma. Following his d

Marlon Garzo Saria, PhD, RN, AOCNS, FAAN

Dr. Saria is an advanced practice registered nurse with over eighteen years of experience in oncology serving in multiple roles ranging from direct clinical care to program development and management. He is currently the Oncology Clinical Nurse Specialist at Providence Saint John’s Health Center a

Maija Reblin, PhD

Maija Reblin is an Assistant Professor in the Department of Health Outcomes & Behavior at Moffitt Cancer Center in Tampa, Florida. She received her PhD in social and health psychology from the University of Utah.

Maija’s research focuses on understanding how relationships and communication

Subject Matter Experts

Michael Fratkin, MD

Father, husband, brother, son, and physician, Dr. Fratkin is dedicated to the well being of his community. Since completing his training, he has made his home and built his family in rural Northern California. He has served his community in primary care in a community clinic system, as a medical dir

Shirley Otis-Green, MSW, MA, ACSW, LCSW, OSW-C

Shirley Otis-Green is Clinical Director at the Coalition for Compassionate Care of California and founder of Collaborative Caring. Her education, research and consultation efforts focus on quality-of-life, palliative care, leadership development and the creation of meaningful organizational change.

Eve A. Isham, PhD

Eve Isham is a cognitive scientist. Her lab explores human cognitive processes including time perception, action, and decision making.

At the University of Arizona, Dr. Isham is the Director of the Consciousness-Action-Time laboratory, an affiliate faculty in the Cognitive Science Graduate Group

Lynne P. Taylor, MD, FAAN, FANA

Lynne P. Taylor, MD, FAAN, FANA, is co-director of the Alvord Brain Tumor Center at UW Medical Center, and a clinical professor of neurology at the University of Washington, Seattle.

She is a neuro-oncologist and is an expert in the care of patients with primary brain tumors, metastatic brain tu

Lisa A. O’Leary, Esq.

Lisa O’Leary is a practicing attorney in California. She received her undergraduate degree from California Polytechnic State University in San Luis Obispo, California where she studied Political Science with a Pre-Law concentration. Lisa completed her legal studies at Thomas Jefferson School of La

Additional Stakeholders

Torrie Fields

Torrie Fields is the Senior Program Manager for Advanced Illness & Palliative Care at Blue Shield of California. She leads the development and implementation of palliative care programs and policies across the state of California.

Torrie is a survivor of cervical cancer, an advocate for palli

Margaretta S. Page, RN, MS

Margaretta is a career neuroscience nurse. She has spent the last 27 years as a member of the UCSF Neuro-Oncology Clinical Team. Her roles have included providing direct patient care to the neuro-oncology patient across the disease trajectory, research, support group facilitation, and patient and pe

Amanda Bates

Amanda Bates is the Research Programs Manager for the National Brain Tumor Society (NBTS). She is leading the development of the Patient and Caregiver Engagement Program. She is also a staff member of the read more

Alumni

Whitney Hayden, MOT/OTR

Care Partner Stakeholder. Whitney blogs about her experience being married to a person living with an incurable brain cancer at www.faithhopeandwine.com.

Michael Hogarth, MD, FACP, FACMI

Care Partner Stakeholder. Michael and his family have been personally affected by brain cancer. He has a strong interest in using health information technology to improve the quality of life of individuals with brain cancer.

Peter Ferrarone, MA, MSW

Research assistant. Peter was the project coordinator for the Brain Cancer Quality of Life Collaborative from 2018-2019 and navigated our work for the first round of funding from PCORI.

Karen A. Smith, RN

Clinical stakeholder. Before retiring in 2015, Karen Smith, RN, was the Clinical Nurse Specialist for Neurosurgery at UC Davis Medical Center for 30 years. Today, she is a facilitator for the UC Davis Brain Tumor Support Group.