Brain Cancer Quality of Life Collaborative
Liz Salmi is a former punk rock drummer turned cancer patient, who now works for a Harvard Medical School teaching hospital on a research project called OpenNotes.
After being diagnosed with a brain tumor at age 29, Liz put her digital communications skills to use by blogging, chronicling her daily symptoms, and seeing how much trouble she could get into with her online medical information. Today, she is passionate about empowering regular people to become more engaged in their own health care and improve their experience as patients.
After her dad was diagnosed with brain cancer in 2015, Liz immediately enrolled in Gliogene, the nation’s only study investigating genetic links in glioma brain cancers. Liz talked about her decision to get involved with research in a 2016 talk at the Stanford Medicine X conference.
Liz serves on the Board of Directors for the National Brain Tumor Society and Patient Advisory panel for the BMJ. Her interests include informatics and palliative care.